What do patients do with access to their medical records?

James J. Cimino, Vimla Patel, Andre W. Kushniruk

Research output: Chapter in Book/Report/Conference proceedingConference contribution

38 Citations (Scopus)

Abstract

We sought to study the phenomenon of patients having access to their own medical records in order to determine the impact on them and on their relationship with their health care providers. We created the Patient Clinical Information System (PatCIS) to interface with the clinical data repository at New York Presbyterian Hospital to allow patients to add to and review their medical data. We also provided educational resources and automated advice programs. We provided access to the system to thirteen subjects over a nineteen-month period and reviewed their activities in the system's usage log. We also collected data via questionnaire and telephone interview. We found that patients varied in their use of the system, from once a month or less to one or more times per day. All patients primarily used the system to review laboratory results. Both they and their physicians believed that use of the system enhanced the patients' understanding of their conditions and improved their communication with their physicians. There were no adverse events encountered during the study.

Original languageEnglish (US)
Title of host publicationMEDINFO 2001 - Proceedings of the 10th World Congress on Medical Informatics
Pages1440-1444
Number of pages5
Volume84
DOIs
StatePublished - Dec 1 2001
Externally publishedYes
Event10th World Congress on Medical Informatics, MEDINFO 2001 - London, United Kingdom
Duration: Sep 2 2005Sep 5 2005

Other

Other10th World Congress on Medical Informatics, MEDINFO 2001
CountryUnited Kingdom
CityLondon
Period9/2/059/5/05

Fingerprint

Medical Records
Health care
Telephone
Interfaces (computer)
Information systems
Communication
Physicians
Information Systems
Health Personnel
Interviews

Keywords

  • Consumer Informatics
  • Electronic Medical Records
  • Personal Health Records
  • World Wide Web

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

Cite this

Cimino, J. J., Patel, V., & Kushniruk, A. W. (2001). What do patients do with access to their medical records? In MEDINFO 2001 - Proceedings of the 10th World Congress on Medical Informatics (Vol. 84, pp. 1440-1444) https://doi.org/10.3233/978-1-60750-928-8-1440

What do patients do with access to their medical records? / Cimino, James J.; Patel, Vimla; Kushniruk, Andre W.

MEDINFO 2001 - Proceedings of the 10th World Congress on Medical Informatics. Vol. 84 2001. p. 1440-1444.

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Cimino, JJ, Patel, V & Kushniruk, AW 2001, What do patients do with access to their medical records? in MEDINFO 2001 - Proceedings of the 10th World Congress on Medical Informatics. vol. 84, pp. 1440-1444, 10th World Congress on Medical Informatics, MEDINFO 2001, London, United Kingdom, 9/2/05. https://doi.org/10.3233/978-1-60750-928-8-1440
Cimino JJ, Patel V, Kushniruk AW. What do patients do with access to their medical records? In MEDINFO 2001 - Proceedings of the 10th World Congress on Medical Informatics. Vol. 84. 2001. p. 1440-1444 https://doi.org/10.3233/978-1-60750-928-8-1440
Cimino, James J. ; Patel, Vimla ; Kushniruk, Andre W. / What do patients do with access to their medical records?. MEDINFO 2001 - Proceedings of the 10th World Congress on Medical Informatics. Vol. 84 2001. pp. 1440-1444
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