What do patients do with access to their medical records?

James J. Cimino, Vimla L. Patel, Andre W. Kushniruk

Research output: Chapter in Book/Report/Conference proceedingConference contribution

38 Scopus citations

Abstract

We sought to study the phenomenon of patients having access to their own medical records in order to determine the impact on them and on their relationship with their health care providers. We created the Patient Clinical Information System (PatCIS) to interface with the clinical data repository at New York Presbyterian Hospital to allow patients to add to and review their medical data. We also provided educational resources and automated advice programs. We provided access to the system to thirteen subjects over a nineteen-month period and reviewed their activities in the system's usage log. We also collected data via questionnaire and telephone interview. We found that patients varied in their use of the system, from once a month or less to one or more times per day. All patients primarily used the system to review laboratory results. Both they and their physicians believed that use of the system enhanced the patients' understanding of their conditions and improved their communication with their physicians. There were no adverse events encountered during the study.

Original languageEnglish (US)
Title of host publicationMEDINFO 2001 - Proceedings of the 10th World Congress on Medical Informatics
PublisherIOS Press
Pages1440-1444
Number of pages5
ISBN (Print)1586031945, 9781586031947
DOIs
StatePublished - Jan 1 2001
Event10th World Congress on Medical Informatics, MEDINFO 2001 - London, United Kingdom
Duration: Sep 2 2005Sep 5 2005

Publication series

NameStudies in Health Technology and Informatics
Volume84
ISSN (Print)0926-9630
ISSN (Electronic)1879-8365

Other

Other10th World Congress on Medical Informatics, MEDINFO 2001
CountryUnited Kingdom
CityLondon
Period9/2/059/5/05

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Keywords

  • Consumer Informatics
  • Electronic Medical Records
  • Personal Health Records
  • World Wide Web

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

Cite this

Cimino, J. J., Patel, V. L., & Kushniruk, A. W. (2001). What do patients do with access to their medical records? In MEDINFO 2001 - Proceedings of the 10th World Congress on Medical Informatics (pp. 1440-1444). (Studies in Health Technology and Informatics; Vol. 84). IOS Press. https://doi.org/10.3233/978-1-60750-928-8-1440