Variation in cost of informal caregiving and formal-service use for people with Alzheimer's disease

Brooke S. Harrow, Diane F. Mahoney, Aaron B. Mendelsohn, Marcia G. Ory, David Coon, Steven H. Belle, Linda O. Nichols

Research output: Contribution to journalArticle

36 Citations (Scopus)

Abstract

This study used a geographically diverse sample to estimate the total cost of informal care and formal services for community-residing Alzheimer's disease (AD) care recipients. Baseline data were used for 1200 family caregivers from the Resources for Enhancing Alzheimer's Caregiver Health (REACH) study, a multisite intervention trial. The replacement-wage-rate approach estimated informal cost. Formal services were assigned a cost based on secondary sources. Annual cost per care recipient amounted to $23,436for informal care and $8,064 for formal services. Variation in informal cost was almost entirely due to instrumental activities of daily living (IADLs) assistance. Cross-site differences in cost persisted controlling for caregiver and care-recipient characteristics. Geographic variation may suggest regional preferences or ethnic/cultural values. Further study is needed to determine whether this reflects differences in access or availability or how including a control group for care recipients with nondementia diagnoses might have affected these findings.

Original languageEnglish (US)
Pages (from-to)299-308
Number of pages10
JournalAmerican Journal of Alzheimer's Disease and other Dementias
Volume19
Issue number5
StatePublished - Sep 2004
Externally publishedYes

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Alzheimer Disease
Costs and Cost Analysis
Caregivers
Patient Care
Salaries and Fringe Benefits
Activities of Daily Living
Control Groups
Health

Keywords

  • Alzheimer's disease
  • Care recipient
  • Dementia
  • Economic burden
  • Geographic variation

ASJC Scopus subject areas

  • Neuropsychology and Physiological Psychology
  • Geriatrics and Gerontology

Cite this

Harrow, B. S., Mahoney, D. F., Mendelsohn, A. B., Ory, M. G., Coon, D., Belle, S. H., & Nichols, L. O. (2004). Variation in cost of informal caregiving and formal-service use for people with Alzheimer's disease. American Journal of Alzheimer's Disease and other Dementias, 19(5), 299-308.

Variation in cost of informal caregiving and formal-service use for people with Alzheimer's disease. / Harrow, Brooke S.; Mahoney, Diane F.; Mendelsohn, Aaron B.; Ory, Marcia G.; Coon, David; Belle, Steven H.; Nichols, Linda O.

In: American Journal of Alzheimer's Disease and other Dementias, Vol. 19, No. 5, 09.2004, p. 299-308.

Research output: Contribution to journalArticle

Harrow, BS, Mahoney, DF, Mendelsohn, AB, Ory, MG, Coon, D, Belle, SH & Nichols, LO 2004, 'Variation in cost of informal caregiving and formal-service use for people with Alzheimer's disease', American Journal of Alzheimer's Disease and other Dementias, vol. 19, no. 5, pp. 299-308.
Harrow, Brooke S. ; Mahoney, Diane F. ; Mendelsohn, Aaron B. ; Ory, Marcia G. ; Coon, David ; Belle, Steven H. ; Nichols, Linda O. / Variation in cost of informal caregiving and formal-service use for people with Alzheimer's disease. In: American Journal of Alzheimer's Disease and other Dementias. 2004 ; Vol. 19, No. 5. pp. 299-308.
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