@article{8212afabf7884e689a1c0f7b9948f6d5,
title = "Mental health professional perspectives on health data sharing: Mixed methods study",
abstract = "This study explores behavioral health professionals{\textquoteright} perceptions of granular data. Semi-structured in-person interviews of 20 health professionals were conducted at two different sites. Qualitative and quantitative analysis was performed. While most health professionals agreed that patients should control who accesses their personal medical record (70%), there are certain types of health information that should never be restricted (65%). Emergent themes, including perceived reasons that patients might share or withhold certain types of health information (65%), care coordination (12%), patient comprehension (11%), stigma (5%), trust (3%), sociocultural understanding (3%), and dissatisfaction with consent processes (1%), are explored. The impact of care role (prescriber or non-prescriber) on data-sharing perception is explored as well. This study informs the discussion on developing technology that helps balance provider and patient data-sharing and access needs.",
keywords = "consent, data privacy, health professional perceptions, interview, mental health",
author = "Adela Grando and Julia Ivanova and Megan Hiestand and Hiral Soni and Anita Murcko and Michael Saks and David Kaufman and Whitfield, {Mary Jo} and Christy Dye and Darwyn Chern and Jonathan Maupin",
note = "Funding Information: Grando Adela https://orcid.org/0000-0002-5852-200X Ivanova Julia Hiestand Megan Soni Hiral Murcko Anita Saks Michael Kaufman David Arizona State University, USA Whitfield Mary Jo Jewish Family and Children{\textquoteright}s Services, USA Dye Christy Chern Darwyn Partners in Recovery, USA Maupin Jonathan Arizona State University, USA Julia Ivanova, School of Human Evolution and Social Change, Arizona State University, Tempe, AZ 85281, USA. Email: jivanova@asu.edu 1 2020 1460458219893848 {\textcopyright} The Author(s) 2020 2020 SAGE Publications This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( https://creativecommons.org/licenses/by-nc/4.0/ ) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages ( https://us.sagepub.com/en-us/nam/open-access-at-sage ). This study explores behavioral health professionals{\textquoteright} perceptions of granular data. Semi-structured in-person interviews of 20 health professionals were conducted at two different sites. Qualitative and quantitative analysis was performed. While most health professionals agreed that patients should control who accesses their personal medical record (70%), there are certain types of health information that should never be restricted (65%). Emergent themes, including perceived reasons that patients might share or withhold certain types of health information (65%), care coordination (12%), patient comprehension (11%), stigma (5%), trust (3%), sociocultural understanding (3%), and dissatisfaction with consent processes (1%), are explored. The impact of care role (prescriber or non-prescriber) on data-sharing perception is explored as well. This study informs the discussion on developing technology that helps balance provider and patient data-sharing and access needs. consent data privacy health professional perceptions interview mental health National Institute of Mental Health https://doi.org/10.13039/100000025 1 R01 MH108992 edited-state corrected-proof typesetter ts1 Declaration of conflicting interests The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. Funding The author(s) disclosed receipt of the following financial support for the research, authorship and/or publication of this article: This work was supported by the National Institute of Mental Health through My Data Choices, evaluation of effective consent strategies for patients with behavioral health conditions (R01 MH108992) grant. ORCID iD Julia Ivanova https://orcid.org/0000-0002-5852-200X Publisher Copyright: {\textcopyright} The Author(s) 2020.",
year = "2020",
month = sep,
day = "1",
doi = "10.1177/1460458219893848",
language = "English (US)",
volume = "26",
pages = "2067--2082",
journal = "Health Informatics Journal",
issn = "1460-4582",
publisher = "SAGE Publications Ltd",
number = "3",
}