Mental health professional perspectives on health data sharing: Mixed methods study

Maria Grando, Julia Ivanova, Megan Hiestand, Hiral Soni, Anita Murcko, Michael Saks, David Kaufman, Mary Jo Whitfield, Christy Dye, Darwyn Chern, Jonathan Maupin

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

This study explores behavioral health professionals’ perceptions of granular data. Semi-structured in-person interviews of 20 health professionals were conducted at two different sites. Qualitative and quantitative analysis was performed. While most health professionals agreed that patients should control who accesses their personal medical record (70%), there are certain types of health information that should never be restricted (65%). Emergent themes, including perceived reasons that patients might share or withhold certain types of health information (65%), care coordination (12%), patient comprehension (11%), stigma (5%), trust (3%), sociocultural understanding (3%), and dissatisfaction with consent processes (1%), are explored. The impact of care role (prescriber or non-prescriber) on data-sharing perception is explored as well. This study informs the discussion on developing technology that helps balance provider and patient data-sharing and access needs.

Original languageEnglish (US)
Pages (from-to)2067-2082
Number of pages16
JournalHealth informatics journal
Volume26
Issue number3
DOIs
StatePublished - Sep 1 2020

Keywords

  • consent
  • data privacy
  • health professional perceptions
  • interview
  • mental health

ASJC Scopus subject areas

  • Health Informatics

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