A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.
|Original language||English (US)|
|Number of pages||10|
|Journal||The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics|
|State||Published - Mar 1 2019|
ASJC Scopus subject areas
- Issues, ethics and legal aspects
- Health Policy