What is a Medical Information Commons?

Juli M. Bollinger, Peter D. Zuk, Mary A. Majumder, Erika Versalovic, Angela G. Villanueva, Rebecca L. Hsu, Amy L. McGuire, Robert Cook-Deegan

Research output: Contribution to journalArticle

Abstract

A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.

Original languageEnglish (US)
Pages (from-to)41-50
Number of pages10
JournalThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics
Volume47
Issue number1
DOIs
StatePublished - Mar 1 2019

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ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Health Policy

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What is a Medical Information Commons? / Bollinger, Juli M.; Zuk, Peter D.; Majumder, Mary A.; Versalovic, Erika; Villanueva, Angela G.; Hsu, Rebecca L.; McGuire, Amy L.; Cook-Deegan, Robert.

In: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics, Vol. 47, No. 1, 01.03.2019, p. 41-50.

Research output: Contribution to journalArticle

Bollinger, Juli M. ; Zuk, Peter D. ; Majumder, Mary A. ; Versalovic, Erika ; Villanueva, Angela G. ; Hsu, Rebecca L. ; McGuire, Amy L. ; Cook-Deegan, Robert. / What is a Medical Information Commons?. In: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics. 2019 ; Vol. 47, No. 1. pp. 41-50.
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