What is a Medical Information Commons?

Juli M. Bollinger; Peter D. Zuk; Mary A. Majumder; Erika Versalovic; Angela G. Villanueva; Rebecca L. Hsu; Amy L. McGuire; Robert Cook-Deegan

doi:10.1177/1073110519840483

What is a Medical Information Commons?

Juli M. Bollinger, Peter D. Zuk, Mary A. Majumder, Erika Versalovic, Angela G. Villanueva, Rebecca L. Hsu, Amy L. McGuire, Robert Cook-Deegan

Future of Innovation in Society, School for the (SFIS)

Research output: Contribution to journal › Comment/debate › peer-review

12 Scopus citations

Abstract

A 2011 National Academies of Sciences report called for an “Information Commons” and a “Knowledge Network” to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.

Original language	English (US)
Pages (from-to)	41-50
Number of pages	10
Journal	Journal of Law, Medicine and Ethics
Volume	47
Issue number	1
DOIs	https://doi.org/10.1177/1073110519840483
State	Published - Mar 1 2019

ASJC Scopus subject areas

General Medicine

Access to Document

10.1177/1073110519840483

Cite this

@article{8bf05be85c054286815ab3a2147ce05b,

title = "What is a Medical Information Commons?",

abstract = "A 2011 National Academies of Sciences report called for an “Information Commons” and a “Knowledge Network” to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.",

author = "Bollinger, {Juli M.} and Zuk, {Peter D.} and Majumder, {Mary A.} and Erika Versalovic and Villanueva, {Angela G.} and Hsu, {Rebecca L.} and McGuire, {Amy L.} and Robert Cook-Deegan",

note = "Publisher Copyright: {\textcopyright} 2019 American Society of Law, Medicine & Ethics.",

year = "2019",

month = mar,

day = "1",

doi = "10.1177/1073110519840483",

language = "English (US)",

volume = "47",

pages = "41--50",

journal = "Journal of Law, Medicine and Ethics",

issn = "1073-1105",