What is a Medical Information Commons?

Juli M. Bollinger, Peter D. Zuk, Mary A. Majumder, Erika Versalovic, Angela G. Villanueva, Rebecca L. Hsu, Amy L. McGuire, Robert Cook-Deegan

Research output: Contribution to journalArticle

4 Scopus citations

Abstract

A 2011 National Academies of Sciences report called for an "Information Commons" and a "Knowledge Network" to revolutionize biomedical research and clinical care. We interviewed 41 expert stakeholders to examine governance, access, data collection, and privacy in the context of a medical information commons. Stakeholders' attitudes about MICs align with the NAS vision of an Information Commons; however, differences of opinion regarding clinical use and access warrant further research to explore policy and technological solutions.

Original languageEnglish (US)
Pages (from-to)41-50
Number of pages10
JournalThe Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics
Volume47
Issue number1
DOIs
StatePublished - Mar 1 2019

ASJC Scopus subject areas

  • Issues, ethics and legal aspects
  • Health Policy

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  • Cite this

    Bollinger, J. M., Zuk, P. D., Majumder, M. A., Versalovic, E., Villanueva, A. G., Hsu, R. L., McGuire, A. L., & Cook-Deegan, R. (2019). What is a Medical Information Commons? The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics, 47(1), 41-50. https://doi.org/10.1177/1073110519840483