Open science precision medicine in Canada: Points to consider

Palmira Granados Moreno, Sarah E. Ali-Khan, Benjamin Capps, Timothy Caulfield, Damien Chalaud, Aled Edwards, E. Richard Gold, Vasiliki Rahimzadeh, Adrian Thorogood, Daniel Auld, Gabrielle Bertier, Felix Breden, Roxanne Caron, Priscilla M.D.G. César, Robert Cook-Deegan, Megan Doerr, Ross Duncan, Amalia M. Issa, Jerome Reichman, Jacques SimardDerek So, Sandeep Vanamala, Yann Joly

Research output: Contribution to journalReview article

Abstract

Open science can significantly influence the development and translational process of precision medicine in Canada. Precision medicine presents a unique opportunity to improve disease prevention and healthcare, as well as to reduce health-related expenditures. However, the development of precision medicine also brings about economic challenges, such as costly development, high failure rates, and reduced market size in comparison with the traditional blockbuster drug development model. Open science, characterized by principles of open data sharing, fast dissemination of knowledge, cumulative research, and cooperation, presents a unique opportunity to address these economic challenges while also promoting the public good. The Centre of Genomics and Policy at McGill University organized a stakeholders’ workshop in Montreal in March 2018. The workshop entitled “Could Open be the Yellow Brick Road to Precision Medicine?” provided a forum for stakeholders to share experiences and identify common objectives, challenges, and needs to be addressed to promote open science initiatives in precision medicine. The rich presentations and exchanges that took place during the meeting resulted in this consensus paper containing key considerations for open science precision medicine in Canada. Stakeholders would benefit from addressing these considerations as to promote a more coherent and dynamic open science ecosystem for precision medicine.

Original languageEnglish (US)
Pages (from-to)1-19
Number of pages19
JournalFacets
Volume4
Issue number1
DOIs
StatePublished - 2019

Keywords

  • Canadian health policies
  • Open science
  • Open science in precision medicine
  • Precision medicine
  • Valorisation

ASJC Scopus subject areas

  • General

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    Moreno, P. G., Ali-Khan, S. E., Capps, B., Caulfield, T., Chalaud, D., Edwards, A., Gold, E. R., Rahimzadeh, V., Thorogood, A., Auld, D., Bertier, G., Breden, F., Caron, R., César, P. M. D. G., Cook-Deegan, R., Doerr, M., Duncan, R., Issa, A. M., Reichman, J., ... Joly, Y. (2019). Open science precision medicine in Canada: Points to consider. Facets, 4(1), 1-19. https://doi.org/10.1139/facets-2018-0034