Missing links: Challenges in engaging the underserved with health information and communication technology

Maria D. Wright, Mindy E. Flanagan, Kislaya Kunjan, Bradley Doebbeling, Tammy Toscos

Research output: Chapter in Book/Report/Conference proceedingConference contribution

1 Scopus citations

Abstract

We sought to understand underserved patients' preferences for health information technology (HIT) and examine the current use of personal health records (PHRs) in Community Health Centers (CHCs) serving low-income, uninsured, and underinsured patients. Forty-three patients and 49 clinic staff, administrators, and providers from these CHC systems were interviewed using open-ended questions assessing patient experience, perceptions of the CHC, access barriers, strategies used to overcome access barriers, technology access and use, and clinic operations and workflow. All seven CHC systems were at some stage of implementing PHRs, with two clinics having already completed implementation. Indiana CHCs have experienced barriers to implementing and using PHRs in a way that provides value for patients or providers/staff. There was a general lack of awareness among patients regarding the existence of PHRs, their benefits and a lack of effective promotion to patients. Most patients have access to the internet, primarily through mobile phones, and desire greater functionality in order to communicate with CHCs and manage their health conditions. Despite decades of research, there remain barriers to the adoption and use of PHRs. Novel approaches must be developed to achieve the desired impact of PHRs on patient engagement, communication and satisfaction. Our findings provide a roadmap to greater engagement of patients via PHRs by expanding functionality, training both patients and clinic providers/staff, and incorporating adult learning strategies.

Original languageEnglish (US)
Title of host publicationPervasiveHealth 2016 - 10th EAI International Conference on Pervasive Computing Technologies for Healthcare
EditorsJesus Favela, Aleksander Matic, Geraldine Fitzpatrick, Nadir Weibel, Jesse Hoey
PublisherICST Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering
Volume2016-May
ISBN (Electronic)9781631900501
DOIs
StatePublished - Jun 16 2016
Event10th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2016 - Cancun, Mexico
Duration: May 16 2016May 19 2016

Other

Other10th EAI International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth 2016
CountryMexico
CityCancun
Period5/16/165/19/16

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Keywords

  • Communication technology
  • Community Health Centers
  • Health information technology
  • Low income
  • Patient engagement
  • Patient portal
  • Patient preferences
  • Patient-centered
  • Personal health record
  • Underinsured
  • Underserved
  • Uninsured

ASJC Scopus subject areas

  • Computer Networks and Communications
  • Information Systems
  • Computer Science Applications
  • Health Informatics

Cite this

Wright, M. D., Flanagan, M. E., Kunjan, K., Doebbeling, B., & Toscos, T. (2016). Missing links: Challenges in engaging the underserved with health information and communication technology. In J. Favela, A. Matic, G. Fitzpatrick, N. Weibel, & J. Hoey (Eds.), PervasiveHealth 2016 - 10th EAI International Conference on Pervasive Computing Technologies for Healthcare (Vol. 2016-May). ICST Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering. https://doi.org/10.4108/eai.16-5-2016.2263330