Abstract
Integrated mental and physical care environments require data sharing, but little is known about health professionals’ perceptions of patient-controlled health data sharing. We describe mental health professionals’ views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals’ views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals’ roles and scope of practice.
| Original language | English (US) |
|---|---|
| Journal | Health informatics journal |
| DOIs | |
| State | Accepted/In press - Jan 1 2020 |
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Keywords
- data privacy
- data sharing
- electronic medical records
- interview
- mental health
- thematic analysis
ASJC Scopus subject areas
- Health Informatics
Cite this
Mental health professionals’ perceptions on patients control of data sharing. / Ivanova, Julia; Grando, Adela; Murcko, Anita; Saks, Michael; Whitfield, Mary Jo; Dye, Christy; Chern, Darwyn.
In: Health informatics journal, 01.01.2020.Research output: Contribution to journal › Article
}
TY - JOUR
T1 - Mental health professionals’ perceptions on patients control of data sharing
AU - Ivanova, Julia
AU - Grando, Adela
AU - Murcko, Anita
AU - Saks, Michael
AU - Whitfield, Mary Jo
AU - Dye, Christy
AU - Chern, Darwyn
PY - 2020/1/1
Y1 - 2020/1/1
N2 - Integrated mental and physical care environments require data sharing, but little is known about health professionals’ perceptions of patient-controlled health data sharing. We describe mental health professionals’ views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals’ views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals’ roles and scope of practice.
AB - Integrated mental and physical care environments require data sharing, but little is known about health professionals’ perceptions of patient-controlled health data sharing. We describe mental health professionals’ views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals’ views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals’ roles and scope of practice.
KW - data privacy
KW - data sharing
KW - electronic medical records
KW - interview
KW - mental health
KW - thematic analysis
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UR - http://www.scopus.com/inward/citedby.url?scp=85077583443&partnerID=8YFLogxK
U2 - 10.1177/1460458219893845
DO - 10.1177/1460458219893845
M3 - Article
AN - SCOPUS:85077583443
JO - Health Informatics Journal
JF - Health Informatics Journal
SN - 1460-4582
ER -