@article{b8a4151056564c259bf5425f3693c154,
title = "Mental health professionals{\textquoteright} perceptions on patients control of data sharing",
abstract = "Integrated mental and physical care environments require data sharing, but little is known about health professionals{\textquoteright} perceptions of patient-controlled health data sharing. We describe mental health professionals{\textquoteright} views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals{\textquoteright} views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals{\textquoteright} roles and scope of practice.",
keywords = "data privacy, data sharing, electronic medical records, interview, mental health, thematic analysis",
author = "Julia Ivanova and Adela Grando and Anita Murcko and Michael Saks and Whitfield, {Mary Jo} and Christy Dye and Darwyn Chern",
note = "Funding Information: https://orcid.org/0000-0002-5852-200X Ivanova Julia https://orcid.org/0000-0002-5769-8556 Grando Adela Murcko Anita Saks Michael Arizona State University, USA Whitfield Mary Jo Jewish Family & Children{\textquoteright}s Service, USA Dye Christy Chern Darwyn Partners in Recovery, USA Julia Ivanova, School of Human Evolution and Social Change, Arizona State University, 900 Cady Mall Tempe, AZ 85281, USA. Email: jivanova@asu.edu 1 2020 1460458219893845 {\textcopyright} The Author(s) 2020 2020 SAGE Publications This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License ( http://www.creativecommons.org/licenses/by-nc/4.0/ ) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access pages( https://us.sagepub.com/en-us/nam/open-access-at-sage ). Integrated mental and physical care environments require data sharing, but little is known about health professionals{\textquoteright} perceptions of patient-controlled health data sharing. We describe mental health professionals{\textquoteright} views on patient-controlled data sharing using semi-structured interviews and a mixed-method analysis with thematic coding. Health information rights, specifically those of patients and health care professionals, emerged as a key theme. Behavioral health professionals identified patient motivations for non-sharing sensitive mental health records relating to substance use, emergency treatment, and serious mental illness (94%). We explore conflicts between professional need for timely access to health information and patient desire to withhold some data categories. Health professionals{\textquoteright} views on data sharing are integral to the redesign of health data sharing and informed consent. As well, they seek clarity about the impact of patient-controlled sharing on health professionals{\textquoteright} roles and scope of practice. data privacy data sharing electronic medical records interview mental health thematic analysis National Institute of Mental Health https://doi.org/10.13039/100000025 1 R01 MH108992 edited-state corrected-proof typesetter ts1 Declaration of conflicting interests The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. Funding The author(s) disclosed receipt of the following financial support for the research, authorship and/or publication of this article: This work was supported by the National Institute of Mental Health through My Data Choices, evaluation of effective consent strategies for patients with behavioral health conditions (R01 MH108992) grant. ORCID iDs Julia Ivanova https://orcid.org/0000-0002-5852-200X Adela Grando https://orcid.org/0000-0002-5769-8556 Supplemental material Supplemental material for this article is available online. ",
year = "2020",
month = sep,
day = "1",
doi = "10.1177/1460458219893845",
language = "English (US)",
volume = "26",
pages = "2011--2029",
journal = "Health Informatics Journal",
issn = "1460-4582",
publisher = "SAGE Publications Ltd",
number = "3",
}