Indigenous Data Sovereignty: University Institutional Review Board Policies and Guidelines and Research with American Indian and Alaska Native Communities

Medicine & Life Sciences

• Alaska Natives 87%
• North American Indians 74%
• Research Ethics Committees 64%
• Indigenous Peoples 42%
• Big Data 41%
• Guidelines 39%
• Ownership 24%
• Information Dissemination 23%
• Intellectual Property 15%
• Referral and Consultation 14%
• Theft 14%
• Interviews 13%
• Music 11%
• Datasets 8%
• Research Personnel 7%

Arts & Humanities

• American Indians 68%
• Sovereignty 54%
• Qualitative Data 26%
• Indigenous Peoples 20%
• Regents 14%
• Ownership 12%
• Abuse 12%
• Oral History 10%
• Indigenous Knowledge 10%
• Research Policy 10%
• Political Sovereignty 9%
• Dance 9%
• Misrepresentation 8%
• Theft 7%
• Intellectual Property 6%
• Ceremony 6%
• Exploitation 5%
• Appropriation 5%
• Song 5%
• Governance 4%

Social Sciences

• institutional review 75%
• American Indian 66%
• sovereignty 54%
• cultural sovereignty 15%
• abuse 6%
• university 6%
• misrepresentation 5%
• oral history 5%
• song 5%
• larceny 5%
• dance 4%
• research policy 4%
• intellectual property 4%
• exploitation 4%
• recording 4%
• governance 3%
• knowledge 3%
• interview 1%
• experience 1%