Drawing on a landscape analysis of existing data-sharing initiatives, in-depth interviews with expert stakeholders, and public deliberations with community advisory panels across the U.S., we describe features of the evolving medical information commons (MIC). We identify participant-centricity and trustworthiness as the most important features of an MIC and discuss the implications for those seeking to create a sustainable, useful, and widely available collection of linked resources for research and other purposes.
|Original language||English (US)|
|Number of pages||9|
|Journal||The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics|
|State||Published - Mar 1 2019|
ASJC Scopus subject areas
- Issues, ethics and legal aspects
- Health Policy