A medical information commons (MIC) is a networked data environment utilized for research and clinical applications. At three deliberations across the U.S., we engaged 75 adults in two-day facilitated discussions on the ethical and social issues inherent to sharing data with an MIC. Deliberants made recommendations regarding opt-in consent, transparent data policies, public representation on MIC governing boards, and strict data security and privacy protection. Community engagement is critical to earning the public's trust.
|Original language||English (US)|
|Number of pages||18|
|Journal||The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics|
|State||Published - Mar 1 2019|
ASJC Scopus subject areas
- Issues, ethics and legal aspects
- Health Policy