TY - JOUR
T1 - Ethics of clear health communication
T2 - Applying the CLEAN look approach to communicate biobanking information for cancer research
AU - Koskan, Alexis
AU - Arevalo, Mariana
AU - Gwede, Clement K.
AU - Quinn, Gwendolyn P.
AU - Noel-Thomas, Shalewa A.
AU - Luque, John S.
AU - Wells, Kristen J.
AU - Meade, Cathy D.
PY - 2012/11
Y1 - 2012/11
N2 - Cancer innovations, such as biobanking technologies, are continuously evolving to improve our understanding and knowledge about cancer prevention and treatment modalities. However, the public receives little communication about biobanking and is often unaware about this innovation until asked to donate biospecimens. It is the researchers' ethical duty to provide clear communications about biobanking and biospecimen research. Such information allows the public to understand biobanking processes and facilitates informed decision making about biospecimen donation. The aims of this paper are 1) to examine the importance of clear communication as an ethical imperative when conveying information about cancer innovations and 2) to illustrate the use of an organizing framework, the CLEAN (Culture, Literacy, Education, Assessment, and Networking) Look approach for creating educational priming materials about the topic of biobanking.
AB - Cancer innovations, such as biobanking technologies, are continuously evolving to improve our understanding and knowledge about cancer prevention and treatment modalities. However, the public receives little communication about biobanking and is often unaware about this innovation until asked to donate biospecimens. It is the researchers' ethical duty to provide clear communications about biobanking and biospecimen research. Such information allows the public to understand biobanking processes and facilitates informed decision making about biospecimen donation. The aims of this paper are 1) to examine the importance of clear communication as an ethical imperative when conveying information about cancer innovations and 2) to illustrate the use of an organizing framework, the CLEAN (Culture, Literacy, Education, Assessment, and Networking) Look approach for creating educational priming materials about the topic of biobanking.
KW - Biobanking
KW - Ethics
KW - Health communication
UR - http://www.scopus.com/inward/record.url?scp=84872246252&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84872246252&partnerID=8YFLogxK
U2 - 10.1353/hpu.2012.0192
DO - 10.1353/hpu.2012.0192
M3 - Comment/debate
C2 - 23124500
AN - SCOPUS:84872246252
SN - 1049-2089
VL - 23
SP - 58
EP - 66
JO - Journal of health care for the poor and underserved
JF - Journal of health care for the poor and underserved
IS - 4 SUPPL.
ER -