Developing a food allergy curriculum for parents

Perla Vargas, Scott H. Sicherer, Lynn Christie, Maureen Keaveny, Sally Noone, Debra Watkins, Suzanna K. Carlisle, Stacie M. Jones

Research output: Contribution to journalArticle

23 Citations (Scopus)

Abstract

Background: Food allergy (FA) is potentially severe and requires intensive education to master allergen avoidance and emergency care. There is evidence suggesting the need for a comprehensive curriculum for food allergic families. Methods: This paper describes the results of focus groups conducted to guide the development of a curriculum for parents of food allergic children. The focus groups were conducted using standard methodology with experienced parents of food allergic children. Results: Participants were parents (n=36) with experience managing FA recruited from allergy clinics at two academic centers. Topics identified by parents as key for successful management included as expected: (i) early signs/symptoms, (ii) 'cross-contamination', (iii) label-reading, (iv) self-injectable epinephrine; and (v) becoming a teacher and advocate. Participants also recommended developing a 'one page-road map' to the information, and to provide the information early and be timed according to developmental stages/needs. Suggested first points for curriculum dissemination were emergency rooms, obstetrician and pediatrician offices. Participants also recommended targeting pediatricians, emergency physicians, school personnel, and the community-at-large in educational efforts. Parents often sought FA information from non-medical sources such as the Internet and support groups. These resources were also accessed to find ways to cope with stress. Paradoxically, difficulties gaining access to resources and uncertainty regarding reliability of the information added to the stress experience. Discussion: Based on reports from experienced parents of food allergic children, newly diagnosed parents could benefit from a comprehensive FA management curriculum. Improving access to clear and concise educational materials would likely reduce stress/anxiety and improve quality of life.

Original languageEnglish (US)
Pages (from-to)575-582
Number of pages8
JournalPediatric Allergy and Immunology
Volume22
Issue number6
DOIs
StatePublished - Sep 2011

Fingerprint

Food Hypersensitivity
Curriculum
Parents
Food
Focus Groups
Self-Help Groups
Emergency Medical Services
Internet
Allergens
Epinephrine
Signs and Symptoms
Uncertainty
Hospital Emergency Service
Reading
Hypersensitivity
Emergencies
Anxiety
Quality of Life
Physicians
Education

Keywords

  • Children
  • Education
  • Food hypersensitivity
  • Qualitative
  • Quality of life

ASJC Scopus subject areas

  • Immunology and Allergy
  • Pediatrics, Perinatology, and Child Health
  • Immunology

Cite this

Vargas, P., Sicherer, S. H., Christie, L., Keaveny, M., Noone, S., Watkins, D., ... Jones, S. M. (2011). Developing a food allergy curriculum for parents. Pediatric Allergy and Immunology, 22(6), 575-582. https://doi.org/10.1111/j.1399-3038.2011.01152.x

Developing a food allergy curriculum for parents. / Vargas, Perla; Sicherer, Scott H.; Christie, Lynn; Keaveny, Maureen; Noone, Sally; Watkins, Debra; Carlisle, Suzanna K.; Jones, Stacie M.

In: Pediatric Allergy and Immunology, Vol. 22, No. 6, 09.2011, p. 575-582.

Research output: Contribution to journalArticle

Vargas, P, Sicherer, SH, Christie, L, Keaveny, M, Noone, S, Watkins, D, Carlisle, SK & Jones, SM 2011, 'Developing a food allergy curriculum for parents', Pediatric Allergy and Immunology, vol. 22, no. 6, pp. 575-582. https://doi.org/10.1111/j.1399-3038.2011.01152.x
Vargas P, Sicherer SH, Christie L, Keaveny M, Noone S, Watkins D et al. Developing a food allergy curriculum for parents. Pediatric Allergy and Immunology. 2011 Sep;22(6):575-582. https://doi.org/10.1111/j.1399-3038.2011.01152.x
Vargas, Perla ; Sicherer, Scott H. ; Christie, Lynn ; Keaveny, Maureen ; Noone, Sally ; Watkins, Debra ; Carlisle, Suzanna K. ; Jones, Stacie M. / Developing a food allergy curriculum for parents. In: Pediatric Allergy and Immunology. 2011 ; Vol. 22, No. 6. pp. 575-582.
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