@inproceedings{1a621d25f74b4f26afa32c5e1c92c789,
title = "Design and pilot testing of an English and Spanish behavioral health patient survey on data privacy",
abstract = "We piloted a Spanish and English survey on data privacy. Thirty-one Latino behavioral health patients completed the survey in person with a preference for paper (78%) over electronic questionnaire. Dialect variations across Latino countries and the lack of tools to assess reading level in Spanish affected comprehension. Our experience will help others address similar tasks more effectively and encourage inclusion of Latino populations in future research.",
keywords = "Behavior, Health Surveys, Latinos, Privacy",
author = "Aliste, {Marcela P.} and Adela Grando and Anita Murcko and Hiral Soni and Michael Todd and Madhumita Mukundan and Michael Saks and Caroline Horrow and Richard Sharp and Christy Dye and Darwyn Chern and Whitfield, {Mary Jo} and Mark Callesen",
note = "Funding Information: This research was supported by the National Institute of Mental Health, through My Data Choices, Evaluation of Effective Consent Strategies for Patients with Behavioral Health Conditions (R01MH108992) grant. Publisher Copyright: {\textcopyright} 2019 International Medical Informatics Association (IMIA) and IOS Press. This article is published online with Open Access by IOS Press and distributed under the terms of the Creative Commons Attribution Non-Commercial License 4.0 (CC BY-NC 4.0). Copyright: Copyright 2019 Elsevier B.V., All rights reserved.; 17th World Congress on Medical and Health Informatics, MEDINFO 2019 ; Conference date: 25-08-2019 Through 30-08-2019",
year = "2019",
month = aug,
day = "21",
doi = "10.3233/SHTI190699",
language = "English (US)",
series = "Studies in Health Technology and Informatics",
publisher = "IOS Press",
pages = "1891--1892",
editor = "Brigitte Seroussi and Lucila Ohno-Machado and Lucila Ohno-Machado and Brigitte Seroussi",
booktitle = "MEDINFO 2019",
}