Abstract
Advances in technologies and biomedical informatics have expanded capacity to generate and share biomedical data. With a lens on genomic data, we present a typology characterizing the data-sharing landscape in biomedical research to advance understanding of the key stakeholders and existing data-sharing practices. The typology highlights the diversity of data-sharing efforts and facilitators and reveals how novel data-sharing efforts are challenging existing norms regarding the role of individuals whom the data describe.
Original language | English (US) |
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Pages (from-to) | 21-30 |
Number of pages | 10 |
Journal | Journal of Law, Medicine and Ethics |
Volume | 47 |
Issue number | 1 |
DOIs | |
State | Published - Mar 1 2019 |
Externally published | Yes |
ASJC Scopus subject areas
- General Medicine