Caring for caregivers: Challenging the assumptions

A. Paul Williams, Allie Peckham, Kerry Kuluski, Janet Lum, Natalie Warrick, Karen Spalding, Tommy Tam, Cindy Bruce-Barrett, Marta Grasic, Jennifer Im

Research output: Contribution to journalReview articlepeer-review

6 Scopus citations

Abstract

Informal and mostly unpaid caregivers - spouses, family, friends and neighbours-play a crucial role in supporting the health, well-being, functional independence and quality of life of growing numbers of persons of all ages who cannot manage on their own. Yet, informal caregiving is in decline; falling rates of engagement in caregiving are compounded by a shrinking caregiver pool. How should policymakers respond? In this paper, we draw on a growing international literature, along with findings from community-based studies conducted by our team across Ontario, to highlight six common assumptions about informal caregivers and what can be done to support them. These include the assumption that caregivers will be there to take on an increasing responsibility; that caregiving is only about an aging population; that money alone can do thejob; that policymakers can simply wait and see; thatfront-line care professionals should be left to fill the policy void; and that caregivers should be addressed apart from cared-forpersons and formal care systems. While each assumption has a differentfocus, all challenge policymakers to view caregivers as key players in massive social and political change, and to respond accordingly.

Original languageEnglish (US)
Pages (from-to)8-21
Number of pages14
JournalHealthcare Papers
Volume15
Issue number1
DOIs
StatePublished - 2015
Externally publishedYes

ASJC Scopus subject areas

  • Health Policy
  • Public Health, Environmental and Occupational Health

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