Cancer patients' fears related to clinical trial participation: A qualitative study

Gwendolyn P. Quinn, Alexis Koskan, Kristen J. Wells, Luis E. Gonzalez, Cathy D. Meade, Christie L. Pratt Pozo, Paul B. Jacobsen

Research output: Contribution to journalArticlepeer-review

36 Scopus citations

Abstract

Patient-related barriers have hindered cancer patients' abilities to participate in the decision-making processes to participate in clinical trials. However, little is known about patients' emotional barrier of fear and how physicians influence this barrier. We conducted 48 in-depth interviews with cancer patients to determine their knowledge and attitudes about participating in clinical trials, transcribed interviews verbatim, and qualitatively analyzed the transcripts using content analysis. For the purpose of this manuscript, we focused on findings related to the role of the emotional barrier of fear in cancer patients' perceptions of participating in clinical trials. The majority of cancer patients (n040, 83.3%) discussed fears surrounding clinical trials, particularly as it related to cancer diagnosis, clinical trial participation, and fear of the unknown. In conclusion, providers might consider addressing the role of fear in patients' considering participating in a clinical trial.

Original languageEnglish (US)
Pages (from-to)257-262
Number of pages6
JournalJournal of Cancer Education
Volume27
Issue number2
DOIs
StatePublished - Jun 2012
Externally publishedYes

Keywords

  • Cancer clinical trials
  • Decision making
  • Fear
  • Patient-provider communication

ASJC Scopus subject areas

  • Oncology
  • Public Health, Environmental and Occupational Health

Fingerprint

Dive into the research topics of 'Cancer patients' fears related to clinical trial participation: A qualitative study'. Together they form a unique fingerprint.

Cite this