Accessing BRCA1/2 data facilitates the detection of disease-associated variants, which is critical to informing clinical management of risks. BRCA1/2 data sharing is complex and many practices exist. We describe current BRCA1/2 data-sharing practices, in the United States and globally, and discuss obstacles and incentives to sharing, based on 28 interviews with personnel at U.S. and non-U.S. clinical laboratories and databases. Our examination of the BRCA1/2 data-sharing landscape demonstrates strong support for and robust sharing of BRCA1/2 data around the world, increasing global accesses to diverse data sets.
|Original language||English (US)|
|Number of pages||9|
|Journal||The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics|
|State||Published - Mar 1 2019|
ASJC Scopus subject areas
- Issues, ethics and legal aspects
- Health Policy