Biological citizen publics: Personal genetics as a site of scientific literacy and action

Stacey Kuznetsov, Aniket Kittur, Eric Paulos

Research output: Chapter in Book/Report/Conference proceedingConference contribution

8 Scopus citations

Abstract

Low-cost genetic sequencing, coupled with novel social media platforms and visualization techniques, present a new frontier for scientific participation, whereby people can learn, share, and act on data embedded within their own bodies. Our study of 23andMe, a popular genetic testing service, reveals how users make sense of and contextualize their genetic results, critique and evaluate the underlying research, and reflect on the broader implications of genetic testing. We frame user groups as citizen science publics - groups that coalesce around scientific issues and work towards resolving shared concerns. Our findings show that personal genetics serves as a site for public engagement with science, whereby communities of biological citizens creatively interpret, debate, and act on professional research. We conclude with design trajectories at the intersection of genetics and creativity support tools: platforms for aggregating hybrid knowledge; tools for creative reflection on professional science; and strategies for supporting collaborations across communities.

Original languageEnglish (US)
Title of host publicationC and C 2015 - Proceedings of the 2015 ACM SIGCHI Conference on Creativity and Cognition
PublisherAssociation for Computing Machinery, Inc
Pages303-312
Number of pages10
ISBN (Electronic)9781450335980
DOIs
StatePublished - Jun 22 2015
EventACM SIGCHI Conference on Creativity and Cognition, C and C 2015 - Glasgow, United Kingdom
Duration: Jun 22 2015Jun 25 2015

Publication series

NameC and C 2015 - Proceedings of the 2015 ACM SIGCHI Conference on Creativity and Cognition

Other

OtherACM SIGCHI Conference on Creativity and Cognition, C and C 2015
CountryUnited Kingdom
CityGlasgow
Period6/22/156/25/15

Keywords

  • Biological citizenship
  • Genetics
  • Publics
  • Scientific literacy

ASJC Scopus subject areas

  • Software

Fingerprint Dive into the research topics of 'Biological citizen publics: Personal genetics as a site of scientific literacy and action'. Together they form a unique fingerprint.

Cite this