My Data Choices evaluation of effective consent strategies for patients with behavioral health conditions

Project: Research project

Description

Our goal is to improve the understanding of behavioral health patients and surrogates data sharing preferences for care and for research. The deliverables for this project are: (1) terminology-based data sharing taxonomies meaningful for patients; (2) deployment and testing of an Informed Consent Management system, MyChoice, and a Trusted Broker to support granular control over data sharing within a behavioral health information exchange; (3) results of the evaluation of the proposed tools; and (4) dissemination of open-source code and lessons learned on clinical, ethical, policy, regulatory and technology research implications.
StatusActive
Effective start/end date7/1/166/30/21

Funding

  • HHS: National Institutes of Health (NIH): $1,980,666.00

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Health
Taxonomies
Terminology
Testing