My Data Choices evaluation of effective consent strategies for patients with behavioral health conditions

Project: Research project

Project Details

Description

Our goal is to improve the understanding of behavioral health patients and surrogates data sharing preferences for care and for research. The deliverables for this project are: (1) terminology-based data sharing taxonomies meaningful for patients; (2) deployment and testing of an Informed Consent Management system, MyChoice, and a Trusted Broker to support granular control over data sharing within a behavioral health information exchange; (3) results of the evaluation of the proposed tools; and (4) dissemination of open-source code and lessons learned on clinical, ethical, policy, regulatory and technology research implications.
StatusActive
Effective start/end date7/1/166/30/21

Funding

  • HHS: National Institutes of Health (NIH): $1,980,666.00

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