Our goal is to improve the understanding of behavioral health patients and surrogates data sharing preferences for care and for research. The deliverables for this project are: (1) terminology-based data sharing taxonomies meaningful for patients; (2) deployment and testing of an Informed Consent Management system, MyChoice, and a Trusted Broker to support granular control over data sharing within a behavioral health information exchange; (3) results of the evaluation of the proposed tools; and (4) dissemination of open-source code and lessons learned on clinical, ethical, policy, regulatory and technology research implications.
|Effective start/end date||7/1/16 → 6/30/21|
- HHS: National Institutes of Health (NIH): $1,980,665.00
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