Coping with hematopoietic stem cell transplantation and psychosocial distress: Development of digital storytelling intervention for caregivers

Project: Research project

Project Details

Description

Coping with hematopoietic stem cell transplantation and psychosocial distress: Development of digital storytelling intervention for caregivers Coping with hematopoietic stem cell transplantation and psychosocial distress: Development of digital storytelling intervention for caregivers Although family caregivers are critical to the recovery and even survival of hematopoietic stem cell transplantation (HCT) patients, little attention has been paid to the impact of HCT on their psychosocial well-being. HCT caregivers can experience higher levels of anxiety and depression than survivors in the transplant period, and distress levels similar to that of survivors in the years to follow. However, interventions to alleviate psychosocial distress for caregivers after HCT have been understudied with inconclusive results. A handful of studies have examined storytelling as an educational and even a therapeutic tool. We have preliminary evidence that demonstrates feasibility of sharing, creating and testing the digital stories as a therapeutic intervention in cancer patients. This proposed pilot study will be conducted in two phases. The purpose of the study in Phase I is to develop digital stories from 8 adult caregivers about their experiences before, during, and after HCT as preliminary data for the intervention in Phase II. The second phase is a mixed-methods, two-group, single-blinded, randomized controlled design (RCT) to test a narrative-based digital story (DS) video intervention for how stories shared by a panel of HCT caregivers impact emotional well-being for 40 caregivers of patients who recently have undergone HCT (compared to an educational control group). We propose to use these DS to be viewed and discussed by other HCT caregivers as a therapeutic intervention to examine influences on their psychosocial status. This is a critical first step to preliminarily test narrative-based stories as a psychosocial intervention that will reduce distress of caregivers, and potentially improve quality of life, and reduce mortality and morbidity rates in HCT patients. Unlike other psychosocial interventions, a DS intervention is an easy-to-deliver, effective, inexpensive, and non-invasive psychosocial support vehicle.
StatusFinished
Effective start/end date1/1/176/30/18

Funding

  • ASU: Mayo Seed Grant: $26,066.00

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