An Embedded ELSI Approach to the Creation of a Novel Human PanGenome Reference: Administrative Supplement

Project: Research project

Project Details


Professor Cook-Deegan will be one of four PIs of the overall ELSI supplement work, along with corresponding PI Barbara Koenig of University of California, San Francisco, Karen Miga of University of California, Santa Cruz, and Nanibaa Garrison from UCLA. He will devote 15 percent of his time to the proposed embedded ethics project. He will engage with Human Pangenome Reference Consortium (HPRC) leaders as part of an Ethical, Legal, and Social Implications research component. He will help plan activities, regularly interact with HPRC researchers and staff at biweekly meetings, engage in workshops and scientific meetings, and co-author reports and publications. He will also supervise students or research assistants at ASU who become engaged in this work, manage the budget supporting that work, and will make the opportunity available to students through the Undergraduate Research Program at the School for the Future of Innovation in Society. He will comply with institutional research policies including annual reporting on conflict of interest, data security, and sexual harassment policies.
Effective start/end date8/1/217/31/22


  • HHS: National Institutes of Health (NIH): $64,651.00


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