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Research Output 1978 2019

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Review article
2017
4 Citations (Scopus)

Fostering reproducibility in industry-academia research Sharing can pose challenges for collaborations

Jasny, B. R., Wigginton, N., McNutt, M., Bubela, T., Buck, S., Cook-Deegan, R., Gardner, T., Hanson, B., Hustad, C., Kiermer, V., Lazer, D., Lupia, A., Manrai, A., McConnell, L., Noonan, K., Phimister, E., Simon, B., Strandburg, K., Summers, Z. & Watts, D., Aug 25 2017, In : Science. 357, 6353, p. 759-761 3 p.

Research output: Contribution to journalReview article

Foster Home Care
Industry
Research
6 Citations (Scopus)

Moving beyond Bermuda: Sharing data to build a medical information commons

Cook-Deegan, R. & McGuire, A. L., Jun 1 2017, In : Genome Research. 27, 6, p. 897-901 5 p.

Research output: Contribution to journalReview article

Bermuda
Medical Electronics
Precision Medicine
Information Dissemination
Electronic Health Records
4 Citations (Scopus)

Sharing data under the 21st century cures act

Majumder, M. A., Guerrini, C. J., Bollinger, J. M., Cook-Deegan, R. & Mcguire, A. L., Jan 1 2017, In : Genetics in Medicine. 19, 12, p. 1289-1294 6 p.

Research output: Contribution to journalReview article

Information Dissemination
Access to Information
Confidentiality
National Institutes of Health (U.S.)
Research
2016
2 Citations (Scopus)

Sequenom v. Ariosa - The death of a genetic testing patent

Cook-Deegan, R. & Chandrasekharan, S., Dec 22 2016, In : New England Journal of Medicine. 375, 25, p. 2418-2419 2 p.

Research output: Contribution to journalReview article

Supreme Court Decisions
Genetic Testing
Prenatal Diagnosis
DNA Sequence Analysis
Pregnancy
2013
80 Citations (Scopus)

Commercial landscape of noninvasive prenatal testing in the United States

Agarwal, A., Sayres, L. C., Cho, M. K., Cook-Deegan, R. & Chandrasekharan, S., Jun 2013, In : Prenatal Diagnosis. 33, 6, p. 521-531 11 p.

Research output: Contribution to journalReview article

Intellectual Property
Technology Transfer
Insurance Carriers
Jurisprudence
Prenatal Diagnosis
8 Citations (Scopus)

Patents and misplaced angst: Lessons for translational stem cell research from genomics

Mathews, D. J. H., Cook-Deegan, R. & Bubela, T., May 2 2013, In : Cell Stem Cell. 12, 5, p. 508-512 5 p.

Research output: Contribution to journalReview article

Stem Cell Research
Translational Medical Research
Patents
Genomics
Biotechnology
2012
11 Citations (Scopus)

Law and science collide over human gene patents

Cook-Deegan, R., Nov 9 2012, In : Science. 338, 6108, p. 745-747 3 p.

Research output: Contribution to journalReview article

Patents
Genes
2011
5 Citations (Scopus)

Boosting health services research

Cook-Deegan, R., Sep 9 2011, In : Science. 333, 6048, p. 1384-1385 2 p.

Research output: Contribution to journalReview article

Health Services Research
Health
Research
2010
7 Citations (Scopus)
Patents
Advisory Committees
Licensure
Colonic Neoplasms
Canavan Disease
14 Citations (Scopus)

Impact of gene patents and licensing practices on access to genetic testing and carrier screening for Tay-Sachs and Canavan disease

Colaianni, A., Chandrasekharan, S. & Cook-Deegan, R., Apr 2010, In : Genetics in Medicine. 12, 4 SUPPL.

Research output: Contribution to journalReview article

Canavan Disease
Tay-Sachs Disease
Patents
Genetic Testing
Licensure
9 Citations (Scopus)

Impact of gene patents and licensing practices on access to genetic testing for Alzheimer disease

Skeehan, K., Heaney, C. & Cook-Deegan, R., Apr 2010, In : Genetics in Medicine. 12, 4 SUPPL.

Research output: Contribution to journalReview article

Patents
Genetic Testing
Licensure
Alzheimer Disease
Apolipoproteins E
17 Citations (Scopus)

Impact of gene patents and licensing practices on access to genetic testing for cystic fibrosis

Chandrasekharan, S., Heaney, C., James, T., Conover, C. & Cook-Deegan, R., Apr 2010, In : Genetics in Medicine. 12, 4 SUPPL.

Research output: Contribution to journalReview article

Patents
Genetic Testing
Licensure
Cystic Fibrosis
Genes
7 Citations (Scopus)

Impact of gene patents and licensing practices on access to genetic testing for hereditary hemochromatosis

Chandrasekharan, S., Pitlick, E., Heaney, C. & Cook-Deegan, R., Apr 2010, In : Genetics in Medicine. 12, 4 SUPPL.

Research output: Contribution to journalReview article

Hemochromatosis
Patents
Genetic Testing
Licensure
Intellectual Property
35 Citations (Scopus)

Impact of gene patents and licensing practices on access to genetic testing for inherited susceptibility to cancer: Comparing breast and ovarian cancers with colon cancers

Cook-Deegan, R., Derienzo, C., Carbone, J., Chandrasekharan, S., Heaney, C. & Conover, C., Apr 2010, In : Genetics in Medicine. 12, 4 SUPPL.

Research output: Contribution to journalReview article

Patents
Genetic Testing
Licensure
Ovarian Neoplasms
Colonic Neoplasms
11 Citations (Scopus)

Impact of gene patents and licensing practices on access to genetic testing for long QT syndrome

Angrist, M., Chandrasekharan, S., Heaney, C. & Cook-Deegan, R., Apr 2010, In : Genetics in Medicine. 12, 4 SUPPL.

Research output: Contribution to journalReview article

Long QT Syndrome
Patents
Genetic Testing
Licensure
Genes
25 Citations (Scopus)

Intellectual property, technology transfer and manufacture of low-cost HPV vaccines in India

Padmanabhan, S., Amin, T., Sampat, B., Cook-Deegan, R. & Chandrasekharan, S., 2010, In : Nature Biotechnology. 28, 7, p. 671-678 8 p.

Research output: Contribution to journalReview article

Papillomavirus Vaccines
Technology transfer
Intellectual property
Costs
37 Citations (Scopus)

Patents in genomics and human genetics

Cook-Deegan, R. & Heaney, C., Sep 22 2010, In : Annual Review of Genomics and Human Genetics. 11, p. 383-425 43 p.

Research output: Contribution to journalReview article

Patents
Medical Genetics
Genomics
Research
Technology
14 Citations (Scopus)

Spinocerebellar ataxia: Patient and health professional perspectives on whether and how patents affect access to clinical genetic testing

Powell, A., Chandrasekharan, S. & Cook-Deegan, R., Apr 2010, In : Genetics in Medicine. 12, 4 SUPPL.

Research output: Contribution to journalReview article

Spinocerebellar Ataxias
Patents
Genetic Testing
Health
Ataxia
2009
20 Citations (Scopus)

Columbia university's axel patents: Technology transfer and implications for the Bayh-Dole Act

Colaianni, A. & Cook-Deegan, R., Sep 2009, In : Milbank Quarterly. 87, 3, p. 683-715 33 p.

Research output: Contribution to journalReview article

Technology Transfer
Patents
Licensure
Inventors
Motivation
2008
29 Citations (Scopus)

Ethical and practical issues associated with aggregating databases

Karp, D. R., Carlin, S., Cook-Deegan, R., Ford, D. E., Geller, G., Glass, D. N., Greely, H., Guthridge, J., Kahn, J., Kaslow, R., Kraft, C., MacQueen, K., Malin, B., Scheuerman, R. H. & Sugarman, J., Sep 2008, In : PLoS Medicine. 5, 9, p. 1333-1337 5 p., e190.

Research output: Contribution to journalReview article

Genetic Databases
Access to Information
Research Ethics Committees
Population Genetics
Genetic Predisposition to Disease
43 Citations (Scopus)

Is Bbayh-Dole good for developing countries? Lessons from the us experience

So, A. D., Sampat, B. N., Rai, A. K., Cook-Deegan, R., Reichman, J. H., Weissman, R. & Kapczynski, A., Oct 2008, In : PLoS Biology. 6, 10, p. 2078-2084 7 p., e262.

Research output: Contribution to journalReview article

Government Financing
Intellectual Property
Technology Transfer
Developing Countries
developing countries

Science and democracy

Fitzpatrick, S. M. & Cook-Deegan, R., Sep 2008, In : Issues in Science and Technology. 25, 1, p. 19-20 2 p.

Research output: Contribution to journalReview article

funding
democracy
direct democracy
basic research
referendum
2006
93 Citations (Scopus)

Evidence and anecdotes: An analysis of human gene patenting controversies

Caulfield, T., Cook-Deegan, R., Kieff, F. S. & Walsh, J. P., Sep 1 2006, In : Nature Biotechnology. 24, 9, p. 1091-1094 4 p.

Research output: Contribution to journalReview article

Genetic engineering
Genes

Genomics and medicine at a crossroads in chernobyl

Ginsburg, G. S., Angrist, M. & Cook-Deegan, R., Oct 6 2006, In : Science. 314, 5796, p. 62-63 2 p.

Research output: Contribution to journalReview article

Nuclear Energy
Genomics
Medicine
Research
Radiation Exposure
63 Citations (Scopus)

The licensing of DNA patents by US academic institutions: An empirical survey

Pressman, L., Burgess, R., Cook-Deegan, R., McCormack, S. J., Nami-Wolk, I., Soucy, M. & Walters, L., Jan 2006, In : Nature Biotechnology. 24, 1, p. 31-39 9 p.

Research output: Contribution to journalReview article

Intellectual Property
Technology Transfer
Patents
Patents and inventions
Licensure
2004
383 Citations (Scopus)

Neurocognitive enhancement: What can we do and what should we do?

Farah, M. J., Illes, J., Cook-Deegan, R., Gardner, H., Kandel, E., King, P., Parens, E., Sahakian, B. & Wolpe, P. R., May 2004, In : Nature Reviews Neuroscience. 5, 5, p. 421-425 5 p.

Research output: Contribution to journalReview article

Mental Processes
Aptitude
Brain
1998
17 Citations (Scopus)

The human genome project after a decade: Policy issues

Burris, J., Cook-Deegan, R. & Alberts, B., 1998, In : Nature Genetics. 20, 4, p. 333-335 3 p.

Research output: Contribution to journalReview article

Human Genome Project
National Institutes of Health (U.S.)
Biomedical Technology Assessment
Financial Management
Genomics
1993
13 Citations (Scopus)

Finding a forum for bioethics in U.S. public policy.

Hanna, K. E., Cook-Deegan, R. & Nishimi, R. Y., Aug 1993, In : Politics and the Life Sciences. 12, 2, p. 205-219 15 p.

Research output: Contribution to journalReview article

Truth Disclosure
Fetal Tissue Transplantation
Passive Euthanasia
Bioethical Issues
Fetal Research
1991
1 Citation (Scopus)

The genesis of the Human Genome Project.

Cook-Deegan, R., 1991, In : Molecular genetic medicine. 1, p. 1-75 75 p.

Research output: Contribution to journalReview article

Government Financing
Human Genome Project
Program Development
Public Policy